Rare disease registries are critical infrastructures for advancing clinical research and improving patient care in conditions where low prevalence and dispersed patient populations present significant ...

Electronic health records (EHRs) comprise a rich source of real-world data for cancer studies, but they often lack critical structured data elements such as diagnosis date and disease stage.

An autism science group called out "red flags" this week after the National Institutes of Health appeared to share plans for an autism registry in a meeting on April 21. Now, the U.S. Department of ...

Pilot program addresses critical evidence gap in emerging regenerative medicine treatments for 32.5 million Americans with ...

MADRID — High-quality data from European diabetes registries are essential for informed decision-making in clinical practice, research, policy, and regulation, experts said during a session at the ...

Chronic wounds affect thousands of patients each year and can lead to serious complications, including amputation and death.

This is a preview. Log in through your library . Abstract Registries were primarily set up to (i) increase the enrollment in trials and (ii) decrease the bias in the published literature. Additionally ...

The Crohn's & Colitis Foundation and an international consortium of leading IBD researchers, today announced the launch of the Global IBD Registry (GLIDE), a pioneering initiative designed to securely ...

Enrollment in managed care among Medicaid enrollees presents challenges to classifying Medicaid coverage in cancer registries. Objectives: To determine agreement between variables capturing the ...

A group of NHS clinicians responsible for registries holding health information on millions of patients are warning of the risk of a major data breach through an NHS England project they claim has ...